Hurry up and wait has become the tireless refrain running through my brain as of late, ever since I restarted the deep-dive investigation into a medical mystery that has haunted the lion’s share of my adult life. You’d think that this 20-year adventure would have fully schooled me in patience. Yet, while this arduous journey has absolutely made me more resilient, relentless, and resolute, being … [Read more...]
A month ago today, I went under anesthesia for what is misleadingly classified as a minor surgery to try to get to the bottom of abnormal bleeding from my lady parts. In between two trips and pre-op appointments with both my gynecological surgeon and my primary care doctor, I spent most of October preparing for a surgery that I suspected would affect me more than the average bear, as most … [Read more...]
With an estimated 1.6 million people living with either Crohn’s disease or ulcerative colitis in the United States, there is increasing need to research safe and effective ways to manage debilitating symptoms that–pardon the expression–hit patients right in the gut. Crohn’s and ulcerative colitis are considered the two main types of inflammatory bowel disease (IBD), and they manifest differently … [Read more...]
Dr. Joaquin Farias, a leading specialist in treating dystonia, has been helping people with this debilitating movement disorder to recover control over their brains, bodies and lives for more than 20 years. As a featured speaker at the 2018 international conference on Movement: Brain, Body and Cognition, held July 27-29 at Harvard University School of Medicine, he gave an enlightening talk that … [Read more...]
Getting through seemingly simple, everyday tasks can feel downright impossible when facing flare-ups of disease affecting the central nervous system. Battling the bottomless pit of fatigue, it might take an hour just to drag yourself from of the warm womb of your bedsheets. When balance is questionable at best, it might be your greatest accomplishment of the day to move from the bed to the couch. … [Read more...]
The season of giving kicks off today with #GivingTuesday, an annual philanthropic movement powered by community collaboration and driven by social media campaigns. Celebrated on the Tuesday following Thanksgiving, Giving Tuesday was founded in 2012 by the Belfer Center for Innovation & Social Impact in New York City to celebrate compassionate service and to encourage individuals to connect and … [Read more...]
I am super jazzed to announce that I will be attending the Accessible Yoga Conference in NYC at the Integral Yoga Institute NYC on May 19-21 of this year! The aim of the Accessible Yoga Conference is to provide education, supportive resources and community for those who seek to increase the accessibility of yoga to meet the needs of people with disabilities and chronic illnesses, seniors, and … [Read more...]
It would be an unequivocal understatement to say that the month of January has been a momentous one for me in my health journey. It was during the second week of January some 17 years ago, when I got into the bike-car accident that resulted in muscle tears, bone bruises and a vicious cycle of chronic pain, insomnia and stress that eventually triggered the full-blown manifestation of autoimmune, … [Read more...]
First, the good news: I was able to successfully get out of bed this morning! You may be wondering why I would bother to make a big deal out of this. Don’t the vast majority of humans roll out of bed every morning without a second thought? Well, on top of the pain and stiffness that often comes with dystonia, lupus and fibromyalgia upon waking, I should probably also tell you that after a marathon … [Read more...]
Like a lion hiding in the underbrush before it pounces on its spied prey, the symptoms and severity of lupus and other auotimmune diseases can sneak up you when you are least prepared for it. One day you may be feeling like your old self before the disease took root, super strong, active and as healthy as the next person. The next day you may literally collapse, a rash spreading across your skin, … [Read more...]