Seeking the Road to Recovery When Eyes Cannot See Clearly

Seeking the Road to Recovery When Eyes Cannot See Clearly

Two months ago, my life with dystonia ‘got flipped turned upside down’ and i’ve been on a rollercoaster ride of recovery from it ever since. Seemingly overnight, my plush California King-sized bed transformed into the terrifying setting for violent contortions that wiped me out for much of the next day. Accompanying this sudden change, the sights that normally inspired me as a writer and the … [Read more...]

She’s Climbing the Stairway To Steady Health

She's Climbing The Stairway to Steady Health

Nine months ago, when my husband and I were moving into the three-story condominium we’re currently renting, I was more than a wee bit concerned with how I’d navigate all those levels. My office would on the top floor, with our bedroom, main bathroom, and laundry beneath me. Two flights of stairs stood between my desk and the kitchen sink, and the ground floor led down another flight of stairs to … [Read more...]

A Sensory Retrospective of Gratitude on a Sleeper of a Year

A Gratitude-Filled Look Back on the Sleeper of A Year 2018

This humble, human vessel I call my own always seems to be brimming over with an abundance of gratitude this time of year. As a December baby, the first day of New Year on the Gregorian calendar shortly follows my own completed rotation around the sun. As a result, the final month of the year becomes an extended period of personal reflection, retrospection and appreciation for the experiences and … [Read more...]

Riding the Body’s Ebbs and Flows: The Bumpy Road To Recovery After A D&C

Riding the Body's Ebbs and Flows- The Bumpy Road To Recovery After A D&C

A month ago today, I went under anesthesia for what is misleadingly classified as a minor surgery to try to get to the bottom of abnormal bleeding from my lady parts. In between two trips and pre-op appointments with both my gynecological surgeon and my primary care doctor, I spent most of October preparing for a surgery that I suspected would affect me more than the average bear, as most … [Read more...]

The Ongoing DINE-CD Trial to Study Whether Diet Might Help Manage Mild to Moderate Crohn’s Disease

Dine-CD

With an estimated 1.6 million people living with either Crohn’s disease or ulcerative colitis in the United States, there is increasing need to research safe and effective ways to manage debilitating symptoms that–pardon the expression–hit patients right in the gut. Crohn’s and ulcerative colitis are considered the two main types of inflammatory bowel disease (IBD), and they manifest differently … [Read more...]

Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence

Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence

This Saturday, my husband and I are heading to Roger Williams Zoo in Providence, RI, for the very first time, and I can’t even explain how much I’m looking forward to this unique experience. It’s been more than a decade since I last visited a major zoo, but getting the chance to have close-up encounters with snow leopards and giraffes isn’t the main reason that I’m itching to get to Providence. … [Read more...]

Dr Farias Reveals How to Recover Control Of Our Brains and Bodies to Redefine Thriving With Dystonia

A Ballerina Remembering Dance

Dr. Joaquin Farias, a leading specialist in treating dystonia, has been helping people with this debilitating movement disorder to recover control over their brains, bodies and lives for more than 20 years. As a featured speaker at the 2018 international conference on Movement: Brain, Body and Cognition, held July 27-29 at Harvard University School of Medicine, he gave an enlightening talk that … [Read more...]

Bob Kuhn Chooses An Attitude of Adventure and Optimism To Face The Challenges of Life With Chronic Illness

Src: Screenshot

At age 60, Bob Kuhn decided to tackle the 50cc Quest, driving his motorcycle 3800 km from San Diego, Calif. to Jacksonville, Fla. in just over two days. In a recent TEDx Talk, the lawyer, who lives with the neurodegenerative movement disorder called Parkinson’s, explained why he decided to take the grueling challenge to cross the United States in 50 hours or less. “In one word: Adventure," he … [Read more...]

Moving into a New Normal of Living With the Movement Disorder Dystonia

Moving into a New Normal of Living With the Movement Disorder Dystonia

Yesterday, I had my first neurologist’s appointment of 2018. After eight years of living with the diagnosis of the neurological movement disorder dystonia, it amazes me just how far I have come. From countless falls every time I tried to walk each day and needing to use wheelchairs and scooters in public, I now find myself able to get through a thorough neurological exam under fluorescent lights … [Read more...]

Psychologist Edith Eger Expounds on How To Be or Not To Be a Survivor of Trauma

Psychologist Edith Eger Expounds on How To Be or Not To Be a Survivor of Trauma

It's been a tremendously empowering and emotionally stirring week of Sounds True's The Healing Summit. At the start, Peter Levine, PhD, coached listeners on how to "tune in and drop into" the body–through the gentle presence, compassionate awareness and rhythmic movement of Somatic Experiencing–in order to dislodge the "tremendous compression of survival energy" locked into the physical form by … [Read more...]