Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence

Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence

This Saturday, my husband and I are heading to Roger Williams Zoo in Providence, RI, for the very first time, and I can’t even explain how much I’m looking forward to this unique experience. It’s been more than a decade since I last visited a major zoo, but getting the chance to have close-up encounters with snow leopards and giraffes isn’t the main reason that I’m itching to get to Providence. … [Read more...]

Dr Farias Reveals How to Recover Control Of Our Brains and Bodies to Redefine Thriving With Dystonia

A Ballerina Remembering Dance

Dr. Joaquin Farias, a leading specialist in treating dystonia, has been helping people with this debilitating movement disorder to recover control over their brains, bodies and lives for more than 20 years. As a featured speaker at the 2018 international conference on Movement: Brain, Body and Cognition, held July 27-29 at Harvard University School of Medicine, he gave an enlightening talk that … [Read more...]

Bob Kuhn Chooses An Attitude of Adventure and Optimism To Face The Challenges of Life With Chronic Illness

Src: Screenshot

At age 60, Bob Kuhn decided to tackle the 50cc Quest, driving his motorcycle 3800 km from San Diego, Calif. to Jacksonville, Fla. in just over two days. In a recent TEDx Talk, the lawyer, who lives with the neurodegenerative movement disorder called Parkinson’s, explained why he decided to take the grueling challenge to cross the United States in 50 hours or less. “In one word: Adventure," he … [Read more...]

Moving into a New Normal of Living With the Movement Disorder Dystonia

Moving into a New Normal of Living With the Movement Disorder Dystonia

Yesterday, I had my first neurologist’s appointment of 2018. After eight years of living with the diagnosis of the neurological movement disorder dystonia, it amazes me just how far I have come. From countless falls every time I tried to walk each day and needing to use wheelchairs and scooters in public, I now find myself able to get through a thorough neurological exam under fluorescent lights … [Read more...]

Novocaine Knocks You Out

Beat Dystonia

After three weeks of feeling beaten down and out of sorts from an upper respiratory infection, I thought I was in the clear–as far as dystonia is concerned. My arms had been feeling like they were on fire from a neuropathy flare-up, but my muscles were still cooperating with my brain, which is always greatly appreciated. In the midst of that period, I’d even been able to drive to visit my friend … [Read more...]

Reconsidering Healing As An Ongoing Journey, Not A Final Destination

The Storm Before The Calm

When dystonia dares to once again rear its twisted head after an extended remission of all but the most benign symptoms, it can sometimes feel like a personal failing on my healing journey. I chastise myself for the lapses in judgment that led to making unwise choices. I berate myself for knowing better than to behave in such foolish ways: I shouldn’t have had a cheat day (or three) of so many … [Read more...]

NYC Conference to Make Yoga More Accessible for People With Chronic Illness

NYC Conference to Make Yoga More Accessible for People With Chronic Illness

I am super jazzed to announce that I will be attending the Accessible Yoga Conference in NYC at the Integral Yoga Institute NYC on May 19-21 of this year! The aim of the Accessible Yoga Conference is to provide education, supportive resources and community for those who seek to increase the accessibility of yoga  to meet the needs of people with disabilities and chronic illnesses, seniors, and … [Read more...]

The Unexpected Gift of Community While Living With Chronic Illness

The unexpected gift of community while living with chronic illness

It would be an unequivocal understatement to say that the month of January has been a momentous one for me in my health journey. It was during the second week of January some 17 years ago, when I got into the bike-car accident that resulted in muscle tears, bone bruises and a vicious cycle of chronic pain, insomnia and stress that eventually triggered the full-blown manifestation of autoimmune, … [Read more...]

How to Better Embody Our Bodies By Honing Our Super Senses

Src: National Geographic Channel

When it comes to our personal experience of the world around us, perception is everything. How we perceive our environment is largely influenced by the information our brains receive from our senses, which help us to determined how to behave and what to feel in a given situation. Every day, we rely on the five most recognizable senses of sight, sound, smell, taste and touch. However, our brains … [Read more...]

Facing Fear Head On: Dropping Down Into Backbend

Child Gymnast

My life revolved around gymnastics for much of my childhood, as I proudly grew from a tiny tumblebee of age 4 to a competitive gymnast in adolescence. As the type of athlete who thrived on strength and speed, one of my absolute favorite things was to go whipping through the air backwards. At the request of my friends, I would not-so humbly tumble through a succession of back handsprings and … [Read more...]