Dr Farias Reveals How to Recover Control Of Our Brains and Bodies to Redefine Thriving With Dystonia

A Ballerina Remembering Dance

Dr. Joaquin Farias, a leading specialist in treating dystonia, has been helping people with this debilitating movement disorder to recover control over their brains, bodies and lives for more than 20 years. As a featured speaker at the 2018 international conference on Movement: Brain, Body and Cognition, held July 27-29 at Harvard University School of Medicine, he gave an enlightening talk that … [Read more...]

Bob Kuhn Chooses An Attitude of Adventure and Optimism To Face The Challenges of Life With Chronic Illness

Src: Screenshot

At age 60, Bob Kuhn decided to tackle the 50cc Quest, driving his motorcycle 3800 km from San Diego, Calif. to Jacksonville, Fla. in just over two days. In a recent TEDx Talk, the lawyer, who lives with the neurodegenerative movement disorder called Parkinson’s, explained why he decided to take the grueling challenge to cross the United States in 50 hours or less. “In one word: Adventure," he … [Read more...]

Moving into a New Normal of Living With the Movement Disorder Dystonia

Moving into a New Normal of Living With the Movement Disorder Dystonia

Yesterday, I had my first neurologist’s appointment of 2018. After eight years of living with the diagnosis of the neurological movement disorder dystonia, it amazes me just how far I have come. From countless falls every time I tried to walk each day and needing to use wheelchairs and scooters in public, I now find myself able to get through a thorough neurological exam under fluorescent lights … [Read more...]

Combat the Consumerism of Cyber Monday With Compassion This Giving Tuesday

#AARDAGIVINGTUESDAY

The season of giving kicks off today with #GivingTuesday, an annual philanthropic movement powered by community collaboration and driven by social media campaigns. Celebrated on the Tuesday following Thanksgiving, Giving Tuesday was founded in 2012 by the Belfer Center for Innovation & Social Impact in New York City to celebrate compassionate service and to encourage individuals to connect and … [Read more...]

Novocaine Knocks You Out

Beat Dystonia

After three weeks of feeling beaten down and out of sorts from an upper respiratory infection, I thought I was in the clear–as far as dystonia is concerned. My arms had been feeling like they were on fire from a neuropathy flare-up, but my muscles were still cooperating with my brain, which is always greatly appreciated. In the midst of that period, I’d even been able to drive to visit my friend … [Read more...]

Reconsidering Healing As An Ongoing Journey, Not A Final Destination

The Storm Before The Calm

When dystonia dares to once again rear its twisted head after an extended remission of all but the most benign symptoms, it can sometimes feel like a personal failing on my healing journey. I chastise myself for the lapses in judgment that led to making unwise choices. I berate myself for knowing better than to behave in such foolish ways: I shouldn’t have had a cheat day (or three) of so many … [Read more...]

Revamping My Perspective on the Path Not Taken

Revamping My Perspective on the Path Not Taken

Through much of my adult years (and much of life, in truth), I've spent far more time than I'd like looking back on the past and wondering 'what if'? That really didn't change until the last few years when I finally learned how to breathe and stay in the moment with meditation–and when my romantic relationship solidified, gaining permanence. In retrospect, it truly is sad how much of the present I … [Read more...]

NYC Conference to Make Yoga More Accessible for People With Chronic Illness

NYC Conference to Make Yoga More Accessible for People With Chronic Illness

I am super jazzed to announce that I will be attending the Accessible Yoga Conference in NYC at the Integral Yoga Institute NYC on May 19-21 of this year! The aim of the Accessible Yoga Conference is to provide education, supportive resources and community for those who seek to increase the accessibility of yoga  to meet the needs of people with disabilities and chronic illnesses, seniors, and … [Read more...]

The Unexpected Gift of Community While Living With Chronic Illness

The unexpected gift of community while living with chronic illness

It would be an unequivocal understatement to say that the month of January has been a momentous one for me in my health journey. It was during the second week of January some 17 years ago, when I got into the bike-car accident that resulted in muscle tears, bone bruises and a vicious cycle of chronic pain, insomnia and stress that eventually triggered the full-blown manifestation of autoimmune, … [Read more...]

Regaining My Confidence To Share My Own Voice

Regaining My Confidence To Share My Own Voice

Those who’ve known me the longest and those who know me the best sometimes express surprise or amusement when I am described as shy or introverted. I don’t blame them for being befuddled really. When I was a little girl, everyone was a potential friend, and I wasn’t afraid to go up to strangers and talk a mile-a-minute in their ear, occasionally with a foreign accent. My mom, I think, is still … [Read more...]