Novocaine Knocks You Out

Beat Dystonia

After three weeks of feeling beaten down and out of sorts from an upper respiratory infection, I thought I was in the clear–as far as dystonia is concerned. My arms had been feeling like they were on fire from a neuropathy flare-up, but my muscles were still cooperating with my brain, which is always greatly appreciated. In the midst of that period, I’d even been able to drive to visit my friend … [Read more...]

Reconsidering Healing As An Ongoing Journey, Not A Final Destination

The Storm Before The Calm

When dystonia dares to once again rear its twisted head after an extended remission of all but the most benign symptoms, it can sometimes feel like a personal failing on my healing journey. I chastise myself for the lapses in judgment that led to making unwise choices. I berate myself for knowing better than to behave in such foolish ways: I shouldn’t have had a cheat day (or three) of so many … [Read more...]

Revamping My Perspective on the Path Not Taken

Revamping My Perspective on the Path Not Taken

Through much of my adult years (and much of life, in truth), I've spent far more time than I'd like looking back on the past and wondering 'what if'? That really didn't change until the last few years when I finally learned how to breathe and stay in the moment with meditation–and when my romantic relationship solidified, gaining permanence. In retrospect, it truly is sad how much of the present I … [Read more...]

NYC Conference to Make Yoga More Accessible for People With Chronic Illness

NYC Conference to Make Yoga More Accessible for People With Chronic Illness

I am super jazzed to announce that I will be attending the Accessible Yoga Conference in NYC at the Integral Yoga Institute NYC on May 19-21 of this year! The aim of the Accessible Yoga Conference is to provide education, supportive resources and community for those who seek to increase the accessibility of yoga  to meet the needs of people with disabilities and chronic illnesses, seniors, and … [Read more...]

The Unexpected Gift of Community While Living With Chronic Illness

The unexpected gift of community while living with chronic illness

It would be an unequivocal understatement to say that the month of January has been a momentous one for me in my health journey. It was during the second week of January some 17 years ago, when I got into the bike-car accident that resulted in muscle tears, bone bruises and a vicious cycle of chronic pain, insomnia and stress that eventually triggered the full-blown manifestation of autoimmune, … [Read more...]

Regaining My Confidence To Share My Own Voice

Regaining My Confidence To Share My Own Voice

Those who’ve known me the longest and those who know me the best sometimes express surprise or amusement when I am described as shy or introverted. I don’t blame them for being befuddled really. When I was a little girl, everyone was a potential friend, and I wasn’t afraid to go up to strangers and talk a mile-a-minute in their ear, occasionally with a foreign accent. My mom, I think, is still … [Read more...]

This Hunchbacked Honey of Fairfield County Hasn’t Got Time for the Pain

How It Really Feels

First, the good news: I was able to successfully get out of bed this morning! You may be wondering why I would bother to make a big deal out of this. Don’t the vast majority of humans roll out of bed every morning without a second thought? Well, on top of the pain and stiffness that often comes with dystonia, lupus and fibromyalgia upon waking, I should probably also tell you that after a marathon … [Read more...]

How We Pick Ourselves Up After We Fall

Fallen or Side Bow Pose

Even when it can seem like the vast majority of my dystonia symptoms are in a strong remission, there is no guarantee that that they will stay that way. Just because I am able to do a two-hour intermediate yoga practice one day does not mean I will be at all steady on my feet the next day—or even later that night. While this reality can be disappointing for friends and family who are counting on … [Read more...]

How to Better Embody Our Bodies By Honing Our Super Senses

Src: National Geographic Channel

When it comes to our personal experience of the world around us, perception is everything. How we perceive our environment is largely influenced by the information our brains receive from our senses, which help us to determined how to behave and what to feel in a given situation. Every day, we rely on the five most recognizable senses of sight, sound, smell, taste and touch. However, our brains … [Read more...]

Donning Purple to Draw Awareness to Lupus

Put On Purple for Lupus Awareness

Like a lion hiding in the underbrush before it pounces on its spied prey, the symptoms and severity of lupus and other auotimmune diseases can sneak up you when you are least prepared for it. One day you may be feeling like your old self before the disease took root, super strong, active and as healthy as the next person. The next day you may literally collapse, a rash spreading across your skin, … [Read more...]