Lately, I’ve been feeling like I’m barely treading a rising tide of roiling waters. I’m just emerging from almost two months of being shut in due to a nasty respiratory infection that wouldn’t quit and to relentless storms leaving several feet of snow that refused to melt in persistently freezing temperatures. Yet the cloudiness of sinus pressure and brain fog lingers, and dystonic episodes … [Read more...]
It appears that autumn is finally starting to creep into Connecticut. It’s back to pajama pants, socks and the comforter on the cooler nights, and I bundle in my lightweight hoodie and bedroom slippers to comfortably get through the chilly mornings. Days give way to sunny, yet mild temperatures. And as someone with heat and sun sensitivity, I embrace these days because it means that I can enjoy … [Read more...]
by Renée Canada Last week, I finally took the big step of firing my rheumatologist. I decided to stop the chemo that I've been on for four months with no significant improvement on my dystonia or the autoimmune diseases we thought were causing it. There had to be a better alternative. After our recent appointment, I told my neurologist that I wanted to try treat my disease naturally. After … [Read more...]