Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence

Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence

This Saturday, my husband and I are heading to Roger Williams Zoo in Providence, RI, for the very first time, and I can’t even explain how much I’m looking forward to this unique experience. It’s been more than a decade since I last visited a major zoo, but getting the chance to have close-up encounters with snow leopards and giraffes isn’t the main reason that I’m itching to get to Providence. … [Read more...]

Novocaine Knocks You Out

Beat Dystonia

After three weeks of feeling beaten down and out of sorts from an upper respiratory infection, I thought I was in the clear–as far as dystonia is concerned. My arms had been feeling like they were on fire from a neuropathy flare-up, but my muscles were still cooperating with my brain, which is always greatly appreciated. In the midst of that period, I’d even been able to drive to visit my friend … [Read more...]

MasterChef Competitor Jaimee Vitolo Increases Awareness About Dystonia

Jamie of MasterChef Season 5

Additional spotlight has been cast on dystonia lately, thanks to one of this season’s MasterChef competitors speaking up about having the disorder. A Season 5 contestant of FOX’s cooking reality show, Jaimee Vitolo, who has successfully avoided elimination in the show thus far, explains her “voice issue and awkward movements” to viewers as symptoms of the movement disorder. On August 11, Vitoli … [Read more...]

Help draw more attention and awareness to the movement disorder dystonia

Dystonia Awareness

Imagine what it would be like to be the middle of talking and discover you can’t shut your mouth for 10 minutes as your jaw muscles fight every effort to close it.  Picture yourself standing in the shower when all the muscles in your lower body either suddenly weaken—or your limbs start jerking around like a puppet on a string—causing enough imbalance for you to collapse on your face in the wet … [Read more...]