In the year and a half that we’ve been together, I’m managed to keep this part of me hidden from my love. It wasn’t a conscious decision for me to hide it from him it just turned out that way. He just happened to catch me in mostly good spell. And while I had occasional flare ups outside of his company, I had never showed signs of my movement disorder, dystonia, in front of him. That’s not to say … [Read more...]
An Unquenchable Thirst for Love: The Paradox of Living with Williams Syndrome
by Renée Canada Imagine being driven by the desire for connection and love, yet finding yourself nearly incapable of sustaining either. Some struggling single folks might relate to this feeling in some bittersweet way. Yet for those born with the rare genetic disorder, Williams Syndrome, this is not the material for self-deprecating, bitingly humorous blogs or heartbreak-with-a-happy-ending … [Read more...]