I still remember the day I sat in my then-rheumatologist’s office more than a decade ago, fatigued and broken, seeking yet another treatment, desperate for solutions. Seemingly helpless in the fight against insomnia, suffering from daily migraines, brain fog and digestion problems and saddled with excruciating pain, numbness and pins-and-needles sensation of misbehaving nerves, I was so physically … [Read more...]
Help draw more attention and awareness to the movement disorder dystonia
Imagine what it would be like to be the middle of talking and discover you can’t shut your mouth for 10 minutes as your jaw muscles fight every effort to close it. Picture yourself standing in the shower when all the muscles in your lower body either suddenly weaken—or your limbs start jerking around like a puppet on a string—causing enough imbalance for you to collapse on your face in the wet … [Read more...]
My License to Heal
The last couple weeks have been landmark ones for me in terms of marking progress in my healing journey. Last week, I began the move into my first home away from my parents in several years. This past Wednesday, I made a trip to the DMV and came away with my license to drive again after 3 1/2 years. These two things alone are huge indications that, after a harrowing journey that sometimes seemed … [Read more...]