Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence

Taking Back Control Over My Moving Limbs at Dystonia Zoo Walk Providence

This Saturday, my husband and I are heading to Roger Williams Zoo in Providence, RI, for the very first time, and I can’t even explain how much I’m looking forward to this unique experience. It’s been more than a decade since I last visited a major zoo, but getting the chance to have close-up encounters with snow leopards and giraffes isn’t the main reason that I’m itching to get to Providence. … [Read more...]

Dr Farias Reveals How to Recover Control Of Our Brains and Bodies to Redefine Thriving With Dystonia

A Ballerina Remembering Dance

Dr. Joaquin Farias, a leading specialist in treating dystonia, has been helping people with this debilitating movement disorder to recover control over their brains, bodies and lives for more than 20 years. As a featured speaker at the 2018 international conference on Movement: Brain, Body and Cognition, held July 27-29 at Harvard University School of Medicine, he gave an enlightening talk that … [Read more...]

Novocaine Knocks You Out

Beat Dystonia

After three weeks of feeling beaten down and out of sorts from an upper respiratory infection, I thought I was in the clear–as far as dystonia is concerned. My arms had been feeling like they were on fire from a neuropathy flare-up, but my muscles were still cooperating with my brain, which is always greatly appreciated. In the midst of that period, I’d even been able to drive to visit my friend … [Read more...]

How to Show Gratitude for the Health of it on Giving Tuesday

Michael J Fox Parkinson's Foundation on Giving Tuesday

After the rush of bargain buys from Black Friday through Cyber Monday, today the focus of the holiday season shifts to celebrating the charitable spirit with Giving Tuesday. This is the third annual global day of giving and generosity, where all are invited to give back to communities or charitable organizations in whichever ways they can—whether by donating their time and services, goods or … [Read more...]

Help draw more attention and awareness to the movement disorder dystonia

Dystonia Awareness

Imagine what it would be like to be the middle of talking and discover you can’t shut your mouth for 10 minutes as your jaw muscles fight every effort to close it.  Picture yourself standing in the shower when all the muscles in your lower body either suddenly weaken—or your limbs start jerking around like a puppet on a string—causing enough imbalance for you to collapse on your face in the wet … [Read more...]